- Administration on Aging – http://www.aoa.gov
- Agency for Healthcare Research and Quality – http://www.ahrq.gov
- Department of Veterans – http://www.va.gov
- National Cancer Institute – http://www.cancer.gov/
- National Center for Health Statistics – http://www.cdc.gov/nchs
- National Institute on Aging – http://www.nih.gov/nia
- National Institute of Health – http://www.nih.gov/
- Senate Special Committee on Aging – http://aging.senate.gov/
- Social Security – http://www.ssa.gov
- AARP – http://www.aarp.com
- Access to Benefits Coalition – http://www.accesstobenefits.org
- Alliance for Aging – http://www.agingresearch.org
- Alzheimer’s Association – http://alz.org
- American Health Care Association – http://www.ahca.org/
- Families USA – http://www.familiesusa.org/
- MedicaireRx Connection – http://www.maprx.info/
- National Center on Elder Abuse – http://www.ncea.aoa.gov/ncearoot/Main_Site/index.aspx
- National Council on Aging – http://www.ncoa.org/
- National Health Council – http://www.nationalhealthcouncil.org/
- National Women’s Health Network – http://www.nwhn.org/
- Society for Public Health Education – http://www.sophe.org
- Visiting Nurse Association of America – http://www.vnaa.org
- Official U.S. Government Site for People with Medicare – http://www.medicare.gov
- Friends of Residents in Long-Term Care – http://www.FORLTC.org
- America Heart Association – http://www.amhrt.org
- American Cancer Society – http://www.cancer.org
- National Institute of Diabetes and Digestive and Kidney Diseases – http://www.niddk.nih.gov
- National Association for Home Care & Hospice – http://www.nahc.org
- Arthritis Foundation – http://www.arthritis.org
- Medicare.gov. An all-purpose site with interactive tools for planning and paying for long-term care and choosing among drug plans. Includes searchable inspection results, good and bad, for the all the nation’s skilled nursing facilities.
- http://www.nih.gov/ . A collaboration of the National Institutes of Health and the National Library of Medicine that provides authoritative information on all diseases and disorders of old age. Each section is available in both large-type and audio versions.
- www.aoa.gov U.S. Administration on Aging. Brief fact sheets on aging and links to outside resources for an assortment of caregiving issues, including financial planning, residential options, in-home services, case management and the law.
- Govbenefits.gov. A tool to help determine benefit eligibility for a variety of government programs.
- http://www.caregiver.org Family Caregiver Alliance. Offers tips on a wide range of topics, including how to hire help, hold a family meeting, balance work and caregiving, find important papers, and decide whether parents should move in with an adult child.
- http://www.caregiving.org/ National Alliance for Caregiving. Reviews of more than 1,000 books, videos, Web sites and links.
- http://www.nfcacares.org/ National Family Caregivers Association. Provides statistics, research and policy reports, tip sheets, first-person accounts, a newsletter and an exhaustive resource list.
- http://www.familycaregiving101.org/ Family Caregiving 101. A separate “how-to” site by the NFCA with advice on time management, asking for help, navigating the health care maze and communicating with insurance companies and hospitals.
Legal and Financial
- www.benefitscheckup.org Benefits Checkup. A search tool developed by the National Council on Aging to determine eligibility for 1,300 benefit programs that help pay for medications, health care, utilities and so forth.
- Reverse.org. A consumer’s guide to reverse mortgages from a non-profit with no ties to the industry. Links to the AARP’s calculator for choosing such policies.
End of Life
- The National Hospice and Palliative Care Organization. An excellent search tool for finding a hospice, as well as guides on issues related to palliative care, including Medicare coverage and techniques for communicating end-of-life wishes.
- Caring Connections. Contains of the consumer information from NHPCO and has state-by-state advance directive forms.
- AARP – political position papers, member discounts, demographic research, online versions of its bulletin, and magazine and consumer advice.
- Center for Medicare Advocacy – detailed information about what Medicare covers, and how to enroll and, if necessary, appeal denial of claims.
- Medicare Rights Center – a similar tutorial on how this government health care program for the elderly works. A link to the Kaiser Family Foundation’s “Medicare 101” and a hotline for questions and complaints.
- Mesothelioma Caregivers Group – Mesothelioma Group is a charitable organization supporting the National Alliance for Caregivers and the American Cancer Society. Mesothelioma is a rare cancer, only affecting 2,000 to 3,000 patients a year, but it’s a very deadly disease. Because the average age of diagnosis is 60, and symptoms are easily mistaken for less serious illnesses, so early detection and awareness for mesothelioma is crucial in improving survival rates.